The Royal College of Surgeons in Ireland (RCSI) is collaborating with FASD Ireland to research wellbeing in those with Foetal Alcohol Spectrum Disorder (FASD).

Despite Ireland having the second highest prevalence of FASD in the world, very little recognition of the condition exists. Our goal is to bring greater awareness of FASD, and to assess the wellbeing of those with it.

It is estimated that between 3-7% of the Irish population has FASD. This condition can impact many different aspects of someone’s life, including increased risk of mental health issues. Despite this, very few people have heard of the condition, and many GP’s do not have the facilities to treat patients with FASD.

This project will bring greater awareness to the condition to hundreds of people across Ireland, and potentially the world. In collaboration with FASD Ireland, this research will further emphasise the importance of improving FASD support and education.

This study has been commissioned by FASD Ireland, an organisation which provides guidance and education relating to FASD. The principal investigator is Dr. Jolanta Burke, assisted by Ms. Angel Harper. This study has been reviewed and received ethical approval from the Royal College of Surgeons in Ireland (RCSI) Research Ethics Committee.

The study will involve a short questionnaire to be completed online. The survey will ask questions regarding mental health and wellbeing, and experiences with FASD.

The questionnaire should take between 15-20 minutes in total, and there will be opportunities to take rests in between questions.

To access the survey please visit: https://app.onlinesurveys.jisc.ac.uk/s/rcsi/wellbeing-in-fasd

Should you need any further information regarding the Wellbeing in Foetal Alcohol Spectrum Disorder research project, please contact: Angel Harper angelharper@rcsi.com

More information on Foetal Alcohol Spectrum Disorder (FASD) is available from FASD Ireland – www.fasdireland.ie

FASD Hub Ireland and FASD Hub Northern Ireland which is a free and confidential support service providing signposting and advice for Foetal Alcohol Spectrum Disorder (FASD). There is no requirement to have a firm diagnosis of FASD to access this service.
Monday to Friday - 10am to 4pm by calling: 
Ireland: 065 670 3098
Northern Ireland: 02895 682 553